Life-saving test for newborns – let’s campaign for it!
Newborn babies deserve a test that could save their lives. That sounds like a no-brainer. One of the things that happens when you are a blogger and/or influencer is that you become aware of so many things that don’t go so great in our world. The good thing is you also have the honour of supporting good causes that just might change things. Today I am letting you know about a life-saving test for newborns
Life-saving test for newborns
When you have your baby, all you want to do is keep it safe. I have an almost 19 year old and I still have that primeval instinct. What is someone or something was preventing you keeping baby as safe as they could be. Imagine you’d heard that there was a test that could be carried out on all newborn babies – a quick, easy and painless test that could help detect potentially life-threatening heart disease. You’d want your baby to have that test, wouldn’t you?
Test for Tommy
Tiny Tickers, the baby heart charity, have created their latest campaign, Test for Tommy. Poignantly the campaign is named in memory of baby Tommy, who died from undiagnosed heart defect at just eleven days old. The ‘test’, they are referring to pulse oximetry testing.
Pulse oximetry testing
Pulse oximetry testing is a non-invasive test that can be performed just a few hours after birth and measures a baby’s blood oxygen levels. With a simple probe attached to baby’s head and foot, you get a reading within seconds. Low percentage levels could be a sign of a heart problem, meaning the baby would be sent for further examination. This would then start the chain of events that would hopefully save their life.
At present, pulse oximetry isn’t part of the mandatory NHS newborn checks (NIPE), meaning not every baby leaving hospital has the test. One in 125 babies are born every year with a serious heart condition and, at present, 1000 leave hospital with no-one knowing they have a potentially life-threatening illness. Tiny Tickers wants to change that, by creating a safety net for those 1000 babies. They are doing this by placing pulse oximetry machines in maternity wards across the UK.
Case studies
Let’s look at two babies, born with the same heart condition and see the difference a pulse oximetry test can make…
When Tommy was born, he displayed all the signs of heart failure that his mum, Natasha, now knows about – his skin was a blue colour, he didn’t want to feed, he was always asleep and cold to touch. Natasha knew something was wrong and voiced her concerns to numerous medical professionals, but it was too late. Tragically, at 11 days old, Tommy passed away. Tommy’s post-mortem showed he had Transposition of the Great Arteries, a heart condition that can be treated with surgery. Natasha is now passionate about ensuring all babies receive a pulse oximetry test because, if Tommy had been tested, he may still be here today.
Tom was also born with Transposition of the Great Arteries. Unlike Tommy, he received a pulse oximetry test after birth. His oxygen saturation levels were dangerously low and his heart condition was diagnosed soon after the test. Tom had open heart surgery at eight days old and is now approaching his third birthday. His mum Nicola, forever grateful for the pulse oximetry test that helped to save his life, says, ‘Without the pulse oximetry test, which is currently not a compulsory part of newborn testing, we would have been sent home. It terrifies me how differently our story may have turned out.’
Sadly, the horror Nicola can only imagine, is a daily reality for Natasha. The stories of two babies with similar names and the same heart condition end so differently because one was offered a pulse oximetry test and the other wasn’t. It’s that simple.
Tiny Tickers has already placed 70 pulse oximetry machines at hospitals throughout the UK and, through the Tommy’s Test campaign, they seek to fund 330 by 2021. But they need our help. With congenital heart disease being one of the biggest killers of infants in the UK, there’s no time to waste.
All babies deserve the best start. Help Tiny Tickers to make sure every baby receives a pulse oximetry test by donating today. For more information, and to donate to the Test for Tommy campaign, visit www.tinytickers.org/test-for-tommy or text BABY46 £5 to 70070 and help support more tiny hearts.
Natasha says, ‘I can never explain to someone the pain of losing your baby. It’s a pain nobody wants to imagine or ever feel’. Let’s help Tiny Tickers ensure no more babies die from an undiagnosed heart condition. Every newborn deserves the test that could save their life. Thank you.
You can follow relevant hashtags on social media – #testfortommy, #pulseox and #chdawareness
You can follow @tinytickers on Twitter, Instagram and Facebook
www.tinytickers.org/test-for-tommy
Tiny Tickers Registered Charity No: 1078114
Are you in favour of this life-saving test for newborns?
Kate Davis-Holmes
Award-winning writer, blogger, social media consultant and charity campaigner. Social Media Manager for BritMums, the UK's largest parent blogging network Freelance clients include Firefly Communications and Save the Children UK. Works with brands on marketing projects. Examples include Visit Orlando, Give As You Live, Coca-Cola and Kodak. Cambridge Law graduate with many years experience working across three sectors in advice, media relations, events, training and project management. Available for hire at affordable rates.
15 Comments
mackenzieglanville
oh my goodness it really is a parents worst nightmare! Such a simple test could have saved his life, it is terrible that this is not always done. Good on you for helping raise awareness!!! Thank you so much for sharing this important post with #ABloggingGoodTime
mackenzieglanville
Again I am back, just heartbreaking! Back with #StayClassyMama
Emma
Wow Kate, the things I have learned from reading your blog posts! I had never heard of this test until now, but having lost twice in pregnancy I cant imagine the pain of losing a child esp if a simple test could have prevented the outcome. Thank you for raising awareness. #BlogCrush
Musings of a tired mummy...zzz...
I had no idea about this test! I hope all hospitals offer it to newborns soon so that no other parents have to suffer the devastation of losing a baby like Tommy. Thanks for linking up with #stayclassymama
Veronica Lee
I’ve never heard of this test before. Thank you for sharing this.
#GlobalBlogging
Jean | Delightful Repast
Kate, why would the NHS not include pulse oximetry in its list of mandatory newborn tests when it is safe, noninvasive *and* inexpensive?! Thank you for raising awareness. #TriumphantTales
anywaytostayathome
I had never heard of this before, blogging really does open up your world sometimes. To think that such a simple test isn’t standard is so sad. #TwinklyTuesday
Mrs Mummy Harris
Is this the test that only costs £11? I said to hubby that where the NHS have stopped paracetamol on prescription as it costs them £10, the additional funds should be put towards this – it’s awful how they’ll throw money in the wrong direction!
Thank you for sharing this with us at #TriumphantTales. I hope to see you back next week.
David
Incredible isn’t it that a doctore comes and counts the fingers and toes as part of the pre-discharge checks on a new born, yet they don’t perform these potentially life savings tests.
#Dreamteam
crummymummy1
I’ve never heard of this before despite bring a mum of three – will share on social! #ablogginggoodtime
Lucy At Home
My daughter also left hospital with a complex and serious medical condition that was easily identifiable (if someone had taken the time to properly investigate) but not picked up on. In the end, we were admitted acutely when she was 3 months old and it was terrifying. I hope this campaign brings about change and this simple test can be introduced so others don’t have to face what tommy and his family went through #blogcrush
Malin - Sensational Learning with Penguin
It’s heartbreaking to read about how the little boy could have been likely to still be alive if his condition had been detected sooner. Certainly sounds very worthwhile testing for! xx #BlogCrush
Jo - Pickle & Poppet
Oh my goodness! If there is a test that can save lives it really should be done! Hopefully this campaign will help that! #TriumphantTales
Musings of a tired mummy...zzz...
Well done for raising awareness of this important test. Thanks for linking up with #globalblogging
Heather Keet
How shocking that such an easy, non-invasive test isn’t performed when the rate of defect seems so high! What a great cause to get attention. #DreamTeam